On Thursday 23rd April at 12:30–13:15 we are hosting a short lunchtime webinar with Ben’s father, Alex, where he will speak candidly about their experience and the difference that your support can make.
Please click here to register for the webinar – If you can’t join live, we will record the session and share it with you all that are registered.
We are supporting a remarkable young boy named Ben. Please spare just a moment to watch Ben’s powerful 4-minute film. Duchenne muscular dystrophy (DMD) is a progressive condition diagnosed in childhood. It causes all the muscles in the body to gradually weaken, including the heart and lungs. DMD almost always affects boys. It is typically diagnosed in childhood between the age of three and six.
There is currently no cure for Duchenne, but there is hope. Duchenne UK are at the forefront of advancing treatments and care for everyone affected by the disease.
Alex's bio
I am first and foremost a devoted father to my two boys, Ben and Zak and husband to Lisa, roles that guide everything I do. Alongside being a dad, I’ve spent the past 12 years working as an Operator in Guest Services, where I’ve become known not only for my skill and reliability, but for the genuine care I bring to the people around me. Over the years, I’ve played a key role in developing high performing teams, mentoring colleagues, and helping to build a work environment grounded in trust, patience and collaboration.
My family’s journey has also shaped my deep commitment to Duchenne muscular dystrophy advocacy when Ben was diagnosed at 4 yrs old. I’ve become a determined voice for families living with Duchenne, dedicating my spare time and energy to raising awareness, supporting fundraising efforts, and engaging with the community.
I work closely with organisations, take part in events, and champion initiatives focused on better treatments, improved care, and greater visibility, carrying forward my belief that strong communities are built by showing up for one another.
Whether I’m at work or supporting the Duchenne community, I try to lead with resilience, compassion, and a steady sense of purpose. My goal is always to lift others up and help drive meaningful progress, reflecting the values I strive to live by as a father, a colleague, and an advocate.
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